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Questions for Dr. Kennedy
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lipedema and lymphedema
Posted by: Vivi
Date: March 17, 2006 9:14 PM

I developed lipedema during puberty, and now in my 50's it is progressing into lymphedema. I believe the lipedema is hormonal in nature, as many women with this also have thyroid problems and it manifests during puberty. It may be a gene defect and be hereditary. Do you have any insights on this, what can be done to help, or where I may look for information. I wondered if it had anything to do with protein or fat metabolism. I believe very little research has been done in this country, more work having been done in Europe. Any insights you could give me would be helpful. I just discovered this has a name, I previously thought it was just fat, but it doesn't reduce with dieting. Women who weigh 100 lbs also have it.

RE: lipedema and lymphedema
Posted by: Ron Kennedy, M.D.
Date: March 19, 2006 8:45 AM

Because this is an unusual condition (even many doctors have not seen it) and just toe be sure we are on the same page, here is a very useful web page which describes the two conditions: [www.lymphnotes.com]. I do not know if the condition is genetic. Because I see so many unexplained conditions finally turn out to be due to hidden chronic infection and heavy metal toxicity, I would also think of this, although I have not had the chance yet to see one of these rare cases and test this theory. It has to be that lipid particles are escaping into the extracellular space and clogging the lymph system. It one could introduce lipase into the extracellular space, that should help a lot, however I have hot been able to obtain pharmaceutical grade lipase for injection from any source. Deep tissue massage therapy by a person who understands the condition may be the best answer now available.



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