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Questions for Dr. Kennedy
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Cryoglobulinemia
Posted by: Nicolas Melgarejo
Date: September 29, 2001 5:03 PM

My mother currently suffers from a very rare disease called mixed eesential cryoglobulinemia ( not HCVassociated ). Although sheīs been on treatment for a while, doctors havenīt been able to achieve well. They have been treated her with toxic drugs ( prednisone, cytoxan ) that have brought her more disease more than health. I am a medical student, and though I was kind of conservative, I have an open mind to alternative sources. What is the best approach and/or non pharmacologic (at least non toxic therapy) on these diseases ? Where can I find in the USA (I live in Colombia) an experienced person to achieve this?

RE: Cryoglobulinemia
Posted by: Ron Kennedy, M.D.
Date: October 1, 2001 5:39 PM

I suggest you look into treatment by apherisis. An apherisis machine separates the elements of the blood and gives the ability to remove undesired elements, returning the rest to the patient. The idea would be to remove the cryoglobulins. I do not have a line on doctors who use this technique, but perhaps calling around in your area to immunologists will turn up someone.



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