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Dercum's Disease (adiposis dolorosa
Posted by: Sara
Date: July 9, 2001 3:39 PM

I have had Dercum's for 38 years and had 15 surgeries for about 100 tumors. In 1993 I moved to Israel and developed an excrutiating pain in my left abdomen which no doctor could diagnose. They keep saying it is probably another Dercum's tumor. However, it feels different, hurts differently and my stomach cannot be touched by clothing or anything without unbearable pain (on top of the Dercum's pain). I have been taking Methadone for pain for many years. It dulls it a little. I now look pregnant at 62. My stomach suddenly bloated up. I am bedridden with pain and fatigue. I have diverticulosis on the right side, but the awful pain is unilateral on the left side. I've done every test. MRI says it looks like lipomatosis. What should be done if that is the proper diagnosis? I tried UBI 8 times. The pain lessened for several days afterward and my energy level was incredible! I am usually fatigued. My arthritic knee didn't hurt for 4 months afterward. I'm tired of doctors and tests, but I don't want to be in bed all the time. Can you suggest what I might do?

RE: Dercum's Disease (adiposis dolorosa
Posted by: Ron Kennedy, M.D.
Date: July 10, 2001 1:31 AM

If this is true Dercum's, it is a genetic disorder and as such treatment is generally inadequate. Treatment is primarily directed at easing painful episodes. Surgical excision of fatty tissue deposits around joints may temporarily relieve symptoms although recurrences often develop. Intravenous infusions of the local anaesthetic drug lidocaine may give temporary relief from pain. Additional treatments of lidocaine may be necessary periodically to sustain the effect.

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