Adjust font size:

Site Search

The Hunger Project Bolen Report
Ohm Society

Questions for Dr. Kennedy
Welcome to Ask Dr. Kennedy. We encourage you to post your comments and questions here. We look forward to challenging questions as they are an education for us as well as for you. Please consider the following guidelines when posting:

Ask Dr. Kennedy is an educational service. Any medical advice on which you act should come directly from your personal physician.
Mention of any commercial products for sale will be removed.
Do not enter your title or message in ALL CAPS. If you do so, it will be removed.
Take care for your spelling, grammar, punctuation, and capitalization.
Severe hair loss, Swollen eyelids/eyes in general, depression, digestive disorders, etc
Posted by: Jacquelyne
Date: May 5, 2005 4:48 PM

I am a 33 year old female diagnosed with fibromyalgia, CFIDS, and have had 2 neurosurgeries for Chiari 1 malformation. I have been on disability for 10 years and have been steadily declining. My question here is that my hair has been falling out all over for several months. It is as if I am undergoing chemotherapy. I am desperate over this! Other new symptoms are swollen eyes/eyelids, very sensitive, and itchy skin . My last neurosurgery was in Jan. The neurological symptoms have largely been resolved. I have had only 2 periods since that time and it has been since the surgery that these disturbing new symptoms have appeared. I am confused because it seems like I have half of the symptoms for hyperthyroidism and half of the symtoms for hypothyroidism. I also have many of the symptoms for perimenopause and PMS. I am not at all overweight. I am on T3 (despite normal range blood results-always test "normal" for everything) and iodine and daily Estrace. I have heat and light intolerance, (sometimes) cold hands and feet, bloating of the abdomen, frequent urination, trouble urinating, night sweats, always hot and sweating,IBS, no concentration, paranoia, teeth clenching, joint pain, swelling of hands and feet, dry, brittle, thin, coarse hair, severe hair loss, swollen glands palpitations severe constipation, apathy, severe fibromyalgia pain treated with methadone, anger, depression, fatigue, insomnia, joint pain. I have an earlier history of bulimia, alcohol, 3 years smoking, birth control pills (no longer), Mono., Scarlet Fever, PMS, antibiotics for acne, migraines, mood swings, candida, urinary tract infections, strep, lock-jaw, swollen glands, TMJ, etc. I was on 4 Prednisone daily 3 months prior to the surgery. I do not know what to do! I am convinced that something hormonal is going on and I don't know if I am taking the wrong things. Endocrinologists read normal blood results and do nothing. What type of testing should I do? Should I stay off of oral contraception? I have been off of them for 7 years and had a terrible time when I stopped them and had difficulty with various symptoms while on them, I have been suffering with so many illnesses for so long that I just can't bear losing all of my hair and having my eyes so swollen and distorted. Given these new symptoms together with a brief history, what does this sound like to you? What can I do immediately to, at least, try to stop the hair loss?

RE: Severe hair loss, Swollen eyelids/eyes in general, depression, digestive disorders, etc
Posted by: Ron Kennedy, M.D.,
Date: May 6, 2005 6:10 AM

As to the loss of hair, topical Rogaine, which can be purchased over the counter, should effectively stop that. As to the larger picture, with all the symptoms you describe, it would seem indisputable that you have a systemic disorder. This could be toxic or infectious or both. Under the toxic category would fall heavy metal toxicity and organic toxins (for example pesticides). Where infectious causes are concerned, if you are not aware of an area of chronic inflammation in your body, it could be a gut wall infection or cavitations or both. Whatever the provoking cause, it surely must have damaged your immune system. In such cases of immune compromise fungal infections of the blood are common and in fact fungal toxins (mycotoxins) can explain most of the symptoms you describe. Bear in mind that I am not diagnosing you, but simply mentioning some possibilities which I have seen in cases which sound similar to yours.

RE: Severe hair loss, Swollen eyelids/eyes in general,depression,digestive disorders,etc
Posted by: Jacquelyne
Date: May 6, 2005 2:28 PM

In what direction would someone like me turn? I have seen alternative, mainstream, combined east/west, hormone spec., neurologists, endocrinologists, Fibro./CFIDS spec.,etc. With the intro. of these new symptoms: severe hair loss, swollen eyes/eyelids, painfully itchy skin, a seizure a few weeks ago, I don't know where to turn anymore. Is it likely only a coincidence that these things began following my second neurosurgery (to put a plate over previous surgery's duraplasty)? Would the steroid use prior to surgery perhaps be involved? Would you recommend my getting an in depth analysis mentioned on this site? Given my condition is obviously complicated and systemic, what does one do when the specialists only treat within their own narrow field or if they claim, in my experience, to treat "holistically" or combined alternative with western med. they tend to have a pretty clear protocol that is applied to everyone (i.e. vit. IV, alter.allergy testing, B12 inject.'s, Oxytocin for Fibro., Hydrogen peroxide IV, etc.) In other words, they each have their "thing" that they do and the patients are applied to it instead of the other way around. What or rather where does someone like me turn?

RE: Severe hair loss, Swollen eyelids/eyes in general, depression, digestive disorders, etc
Posted by: Ron Kennedy, M.D.,
Date: May 6, 2005 4:11 PM

Very good question. I wish I had a list of docs who know how to approach a problem like yours. Some of the therapies you mentioned are sometimes enough to help a person over the "hump," so to speak, but after a certain degree of involvement the immune system is no longer able to kick in and overcome. In such cases one must begin at the beginning and remove metals, test and treat for the residual metal burden, clear the blood of fungus, restore the gut and generally detox the entire system. With that, the immune system kicks in and takes over again. It is not that hard to accomplish, but it is time consuming and expensive, especially when it comes to dental work and few docs, even alternative (and never mainstream) have mastered the entire sequence. You can order a list of docs from the "Click Here To Find A Doctor" button above and take your chances, or you can come to see me in California.

RE: Severe hair loss, Swollen eyelids/eyes in general, depression, digestive disorders, etc
Posted by: Jacquelyne
Date: May 10, 2005 5:06 PM

I had 6 small mercury "silver" dental fillings removed years ago. I have done some chelating in various ways. I have seen the so called "best" (alternative MD's) docs up and down the East Coast who specialize in homeopathic, CFIDS, preventative, hormone, accupuncture, anti-aging, chronic illness, fibro., etc. I have had my blood read under dark field scope that you mentioned (blood never "terrible"). I've taken the"potions", powders, drops, injections, IV's, hormones, colonics, raw food, then high protein , then anti candida, then juicing, thousands of supp.'s and med.'s I have been hair tested, stool (tested high for mercury, aluminum, etc.) , blood, urine, saliva. I did most of this before realizing I had a Chiari 1 for which I needed surgery. After this, I quickly became pregnant after years of infertility. My question now is, my immense neurological issues, are for the moment stable. The last surgery, 4 months ago, was mainly done to correct a problem left by the first surgeon. It appears that nothing I tried was going to be effective until clearing up the brain stem compression. So, do I have to, now, go back and do all of this again, in a hit and miss approach with this spec. or that one? How would your approach for someone like me differ? And how would you be able to address the obviously broad-specrum nature of my illness(es)? How is it that someone like Lance Armstrong could be so close to death and then be able to really come back and yet, no matter what I do or who I see, I just get worse year after year. I have a 2 year old, a significantly older husband. I fear for her if this is where my health is at only 33.

RE: Severe hair loss, Swollen eyelids/eyes in general, depression, digestive disorders, etc
Posted by: Ron Kennedy, M.D.,
Date: May 11, 2005 1:44 AM

Reative hypoglycemia is a problem involving toxicity and nutrition. The insulin receptors have een damaged and disabled. The provoking cause must be tracked down and removed. In the meantime, the treatment is to not seriously challenge the system with a load of simple or refined carbs. To undo a situation like yours requires uncompromising removal of cause and then vigorous treatment of the damage left behind. So far you have received bandaids to cover an infected wound so to speak in an analogy. I can't tell you exactly how that will look until I have done the proper evaluation. I suggest that in your case you do not use the Educational Consultation service, as you already know what you need to know to make a choice. You can reach me at 707-591-4088 if you want an appointment.

Edited 1 time(s). Last edit at October 4, 2011 6:30 PM by Dr. Kennedy.

This Thread has been closed


health healing information, physician medical library medical informaion, health, healing, advertising
(1694 words)