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Questions for Dr. Kennedy
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Wilson's Syndrome
Posted by: Mary
Date: September 8, 2004 2:39 AM

Our 19 year old daughter recently finished 10 treatments of IV DMPS for mercury toxicity. Her levels are now about 3-4 mg. I came to understand the condition of hypometabolism on your site as she had most all of the symptoms and had been unwell for over 5 years. You mentioned that the leading cause was mercury toxicity and leaky gut...on down to Wilson's Syndrome. After chelation therapy none of her symptoms improved. We switched to a holistic health and wellness center. Our daughter is currently under the care of a naturopathic nurse practitioner who I found on your site. She has been undergoing numerous natural therapies including colon cleansing, hyperbaric oxygen therapy, and ultraviolet light therapy...all have been very helpful and we are beginning to see slow improvement. After a hair test analysis (through Doctor's Data Lab) it was discovered that she had an extremely high ratio of Ca/K indicating hypothyroid function. She still suffers from extreme fatigue, headaches, falling hair, and low body temp. until just recently. I have read and reread your articles on hypothyroidism and Wilson's Syndrome. A thyroid panel was just run with the following results: TSH-1.358, T4-7.2, T3 uptake - 28, Free Thyroid Index - 2.0, T3 - 127, and RT3 - 252. Do you think she suffers from Wilson's RT3 Dominance Syndrome? She has been under naturopathic care taking about 48 whole food (Standard Process) organic supplements with each meal to help detox liver, restore gallbladder function, heal stomach etc. We just discovered a few days ago that her body temperature is back to normal after being very low for years. Could she still have Wilson's even though body temp is now normal? Of course we started this investigation years ago through traditional practitioners...and they could find nothing wrong with our daughter. A recent blood panel still shows normal scores in all areas.

RE: Wilson's Syndrome
Posted by: Ron Kennedy, M.D.
Date: September 8, 2004 3:47 AM

I would not necessarily trust a few reading of the thermometer. Continue to take her temperature. She could have a mild URI and thus her temp would be normal (i.e. a fever for her). Also, even in hypometabolic people, one occasionally finds a normal temp here and there but it falls back into the cold range if you keep watching it. I presume her dental amalgam has been removed, if she had any. If not, it is useless to give DMPS or any other chelator. The source must be removed or no progress will accrue. You must also look at her overall lifestyle in terms of diet, exercise, sleep habits, personal adjustment to being 19 years of age - very difficult for most, possible toxicities - drugs, alcohol, cigarettes, etc. Also, keep in mind the possibility of chronic hidden infections. Chronic infections drop the metabolic rate and lower the temp. The main areas of chronic hidden infection are gut wall and jaw (cavitations). If these are present, there will be no progress until they are recognized and adequately treated. Except for exotic undiagnosed illness, which is always a possibility, these are the things to be aware of. If all these items check out, then consider Wilson's and find a doc who follows Wilson's protocol. You didn't give me the normal ranges of those tests and I don't carry those around in my head - also they are different from lab to lab, but that RT3 and T3 look a little suspicious of what Wilson originally described as Wilson's syndrome. I have to emphasize that Wilson's is the last thing to think if, even if it is Wilson's because - at least in my experience - unless everything else is addressed, merely treating with Wilson's protocol does not have a lasting effect.

RE: Wilson's Syndrome
Posted by: Mary
Date: September 9, 2004 10:56 PM

Our daughter had all amalgams removed several years ago due to ongoing decay for unknown reasons. At that time we did not realize the proper protocol. She is continuing with chelation therapy (oral) to remove the last bit of mercury. As mentioned previously, she is working with a naturopathic physician who found a number of issues like adrenal fatigue, low blood sugar, and low functioning gallbladder (which doctors wanted to remove). She is currently going through detox protocols for liver/gallbladder which seem to be helping. Several months ago she began to have problems with food allergies which you said (naturopathic concurred) were due to high level of toxins in liver/g.b. In addition to her extreme fatigue all the time (she has withdrawn for college this semester to try and get well), she urinates VERY frequently. She doesn't get up at night, however. Her current urine tests are normal and several years ago went through extensive testing with traditional endocrinologist and all was normal. Could it be that even though she is drinking lots of water it is not permeating cell walls and she is not staying hydrated? She was tested for diabetes - all normal. She also suffers from falling hair. Do you have any ideas as to what might be the cause of the frequent urination? She has very healthy habits - has been eating organically, no alcohol, drugs, etc.

RE: Wilson's Syndrome
Posted by: Ron Kennedy, M.D.
Date: September 10, 2004 5:20 AM

Water will freely permeate cell membranes for as long as one is in the living state. No worries there. As to why she may exhibit urinary frequency, this could be due to irritation of the bladder which could in turn be due to infection or toxicity, and also possibly simple anxiety. Since it is not present at night, anxiety seems more likely. That is as specific as I can be in this circumstance.

RE: Wilson's Syndrome
Posted by: Mary
Date: September 11, 2004 9:55 PM

You have mentioned cavitations to me on a number of occasions. I have read your article which is a bit technical for me! Do you think this is something we should have checked out? Our daughter has had wisdom teeth removed which you mentioned was frequently an issue with pockets attracting bacteria and toxins. It so happens that Dr. Shankland, the expert that you reference in your article is here in Columbus, OH - only a few minutes from our home. She doesn't have any real pain in jaw area, but has mentioned a few times that jaw aches when she is out in the sun. Is there a non-intrusive and thorough way of checking for cavitations? Are they only found in jaw area or elsewhere in body? Also the naturopathic doctor she has been seeing recently did a water foot therapy where feet were placed in shallow bucket with some type of electrical unit which ran currents through water (she thought perhaps salt was added) and toxins were then drawn out through the feet. Apparently one can tell what organ is detoxing by color of the water. Her water turned dark green (indicating g.b. toxicity- which we know is a big issue) and there was a heavy layer of sludge on top which indicated yeast infection. Would the basic liver/g.b. detoxing protocol address the yeast issue also?

RE: Wilson's Syndrome
Posted by: Ron Kennedy, M.D.
Date: September 11, 2004 11:57 PM

Cavitations are usually painless which is what makes them so insidious. Probably the entire population should be screened for them, but that may not happen soon. Osteoradionecrosis (cavitations) can occur elsewhere in the body, but they are rare except in the jaws. The test for the jaw area is a Panorex x-ray in which they are easily seen. Yeast overgrowth is present as long as the debilitating causes are present whether that is acidity, chronic infection, heavy metal toxicity or in some cases constitutional weakness. Dealing with the gall bladder is not likely to be enough to eliminate the problem.



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