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Usual Interstitial Pneumonitis
Posted by: Diane
Date: June 4, 2003 9:00 PM

After years and years of trying to get answers to what was wrong with my lungs - I started with doctors in 1985 - I finally underwent a lung biopsy. Through the years my problem was dismisses as allergies, slight case of asthma, being out of shape, and COPD.

Finally the diagnosis is in. They are calling it Usual Interstitial Pneumonitis. My type falls somewhere between the progressive and the indolent types of the disease. My choices of treatment are limited and generally very limited in effectiveness. I am currently on Prednisone. The other drug that my doctor wants me to use is Actimmune which is an interferon type drug.

They don't know what causes the inflammation in the interstitial lining of my lungs but unless it can be stopped it will continue to damage my lungs. When this disease started I was in my middle thirties, I am currently 50. I have lived with this disease for about 18-20 years. Now, however I am on oxygen full time. I feel very bitter that all the time I spent going to the doctors, all the tests that came back negative, all the times I was ignored or dismissed - I was dying. This disease is progressive and has no known cure, i.e. it is terminal.

RE: Usual Interstitial Pneumonitis
Posted by: Ron Kennedy, M.D.
Date: June 4, 2003 11:32 PM

First of all, as they told us in medical school "idiopathic" refers to the doctor who feels like an idiot because he/she does not understand the "pathos" (disease). In this case, it is a kind of misnomer in that we do now have some understanding about the cause and what to do about it, although the approach I am about to describe has not reached the "mainstream." Second, do not accept the word "terminal," do not become hopeless. The world is full of healthy people who have been told by doctors they would not make it another six months, year, whatever. Adopt an optimistic attitude, and in fact I believe you have or you would not be reaching out for answers.

In many cases, this disorder is associated with other disorders, one of which is the same disorder in other members of a family, thus in these cases it is thought of as "familial." Sometimes it is associated with other diseases, frequently the collagen vascular disease and then we think of it a part of that collagen vascular disease. Examples are scleroderma and polymyositis. In other cases there are what are thought of as provoking agents, such as antibiotics and other medications, chemotherapy, cocaine, etc., also environmental exposures such as asbestos and talc. These lists are not even close to complete; I am just making the point.

When none of these associated findings are noticed to be present by the doctor, it will be called idiopathic meaning you have the disease and the doctor feels like an idiot.

The Germans have done a lot of work in this area and are years ahead of the rest of the world. The SanPharma remedies have been developed which have a potent effect on allowing the immune system to regulate itself. You see, for whatever reason your immune system thinks there is a pathogen in your lungs and it is reacting in accordance with this thought, producing a chronic pneumonia. It is critically important to discover any possible provoking agent and eliminate it. In my opinion, if none can be identified then it is safe to assume the probable source are the bacteria in the gut, in other words the lungs are reacting to compounds made by organisms existing in the gut in a dysbiotic state. Thus restoring the gut to pristine condition is critical to recovery. It has been rightly said that "The road to health is paved with good intestines."

Finding the doc who is familiar with the SanPharma remedies is the trick. As yet, I know of no network of such doctors or any organizations which can provide such a list. You can always come and see me although we may be far away from each other. The good news is there are airplanes. You may also want to search around your community for someone experienced with the SanPharma remedies.

RE: Usual Interstitial Pneumonitis
Posted by: Diane
Date: June 6, 2003 2:40 PM

What you have said interests me greatly. I was also wondering about bio-oxidative medicine. Would this be applicable to my condition also?

RE: Usual Interstitial Pneumonitis
Posted by: Ron Kennedy, M.D.
Date: June 6, 2003 2:43 PM

If you are having trouble getting enough oxygen and if this is at least partially because your blood oxygen concentration is below the optimal level, then yes, intravenous hydrogen peroxide therapy could help you.

This Thread has been closed


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