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Could I have Wilson's syndrome?
Posted by: Cheryl
Date: February 22, 2003 6:51 PM

I have a low temperature of about 97.4 and all the symptoms of Wilson's syndrome, dry skin, cold, hair loss, brittle nails, hypoglycemic, fatigue, etc. I eat very healthy and exercise. All my blood work was normal with my regular physician. I went to a nurse practitioner and she suggested I have additional thyroid tests. The results are as follows: TSH 3.5 , T-4 free 0.85 -normal was (0.58-1.64) T3 free 3.4 - normal was (2.3 to 4.2), RT3 was 214 - normal was (90 to 350). My antibody tests were normal and insulin was fine. I did suffer from severe stress and thought I might have Wilson's but I think my blood work looks fine. I have always been very healthy until this stressful period 8 years ago and haven't been the same since. Do you think a trail of TRT3 would help me given those test results. I tried taking Armour thyroid which the nurse practitioner gave me and felt better at first but after a few days my body wouldn't tolerate it - couldn't sleep, muscle twitching palpitations. I don't seem to tolerate vitamins or supplements of any kind - another symptom I have now. I always could in the past so this hypometabolism has also interfered with my immune system. It's scary. I thought since TRT3 was natural - maybe I could tolerate that. I think if I could just get my temp back to normal I would feel better. I am not sure where to go from here. I am 47 years old, weigh 125.

RE: Could I have Wilson's syndrome?
Posted by: Ron Kennedy, M.D.
Date: February 22, 2003 7:16 PM

Before I answer, tell me two thing: (1) presence of intestinal bloating, gas, etc., and (2) presence of dental amalgam and/or regular consumption of fish.

RE: Could I have Wilson's syndrome?
Posted by: Cheryl
Date: February 22, 2003 7:59 PM

I had my mercury fillings removed 4 years ago by a dentist who used all the precautions - inhaler, rubber dam, etc. Then I went for intravenous Vit. C treatments after. I had 3 Vit. C treatments - very high doses. I had my fillings removed in hopes of getting rid of the Wilson's symptoms but it didn't help. What did help was I got pregnant (by accident). I felt great or normal again - I could tolerate supplements - but then had a miscarriage at 10 weeks. Slowly after the miscarriage I went back to feeling terrible but not as bad as before. I had my fillings removed sometime after the miscarriage. I think the large doses of Vit. C affected my immune system again and I couldn't take supplements anymore after the third one. Since then I have been unable to stay pregnant. I had 2 healthy normal pregnancies before the period of stress that I went through after my 2nd child was born. I don't have any bloating or gas. I live in Boston and have been to several doctors for tests which all come out normal - my doctor even sent me to Mass General for tests. Hope this helps.

RE: Could I have Wilson's syndrome?
Posted by: Ron Kennedy, M.D.
Date: February 23, 2003 3:53 AM

Although you did not answer my question about intestinal bloating and gas, nor my question about fish, you did say enough to allow me to comment. I could go on and on, but I have written an article on cases exactly like yours, so let's save some time. You can find it at:

Paste that into your browser window and read up. I will comment on two things in your case to have it all make sense to you. First, you apparently never went through removal of residual mercury; you had only removal from your teeth and then a Vit. C drip to sweep out the mercury which was liberated during the drilling which would have been effective at that job only if you had the drip within 2 hours of drilling - if not within 2 hours it was a totally useless exercise. Either way, that was very inadequate. The mercury in the dental amalgams is no problem. The problem is that over the years the stuff migrates around the body and settles within cells, especially in the brain and spinal cord which requires several months of oral chelation to remove after the source is gone. So, if ever you were mercury toxic, you still are mercury toxic as it takes years for the merciry to come out on its own even if you stop eating fish or hanging out at that old mercury mine. Second, the fact that at times you have not been able to tolerate vitamins is a pretty good sign that you have had leaky gut syndrome. When you read the referenced article you will see where all this fits in.

Finally, as to Wilson's syndrome, your lab studies do not support it. The Reverse T3 should be at least 100 times the Free T3 and it is not. Dr. Wilson has shifted his position over the years to calling just about all cases of hypometabolism "Wilson's syndrome" and my impression is that he is in the same bind as mainstream medicine in that he does not comprehend the other many factors which slow metabolism to produce all those symptoms he describes. So, he ascribes all of it to thyroid and tries to overcome it by manipulating the thyroid system. I disagree. I see the best results when the actual cause of the individual case of hypometabolism is pinned down and treated as such.

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