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Hereditary Angio Edema and Fatigue
Posted by: Michele Riggs
Date: February 18, 2002 11:53 PM

I am a 29 year old female. I have Hereditary Angio Edema, and I am treating it by alternative methods of trying to prevent attacks, and treating them as they come. I am on receiving C1 Esterase shots through a trial study right now when my attacks are life threating (stomach, throat etc.) This has seemed to work fairly well.

The problem I am addressing now though is extreme fatigue. I have almost all the symptoms assosiated with Wilson's disease and a few associated with adrenal fatigue. I have been tested and my CBC was fine except my RDW was high. On the metabolic panel my BUN was low as was my ALT. Since my thryoid seems fine my doctors have not offered any solutions for my problems. I even saw a endocronologist, he just wanted to talk about my HAE.

I already do not work, but I have a 6 year old daughter whom I home school. I can barely keep my house clean, my husband does most of it, and I am extremely emotional. I eat well, and exercise, none of these things seem to help. I read a lot and try all the recommendations, like high protein, no sugar or refined carbs, but these things don't seem to help. I take supplements and herbs and aloe. I even see a chiropractor who believes in nutrional healing, and that has not helped. Please if you have any suggestions let me know. I have so much to give, but no energy to do it, and I just don't think it is right that so many doctors dont have any answers. I live in Eugene, Oregon if you know of any doctors in this area also that believe in a more holistic approach.

RE: Hereditary Angio Edema and Fatigue
Posted by: Ron Kennedy, M.D.
Date: February 19, 2002 10:28 PM

It may be the better part of wisdom to look beyond the rare diagnosis you have to the usual causes of fatigue: toxicity and poor digestion. Consider heavy metals, poor diet, exposure to industrial toxins, herbicides, pesticides. Consider also dysbiosis and gut wall infection. Click on Basis of Phyical Health above and this should give you some ideas. Also, read up on Dental Amalgam Induced Mercury Toxicity.

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