The official mainstream medicine line on chronic fatigue immune dysfunction syndrome (CFIDS) is that
it is a "chronic inflammatory illness of undetermined origin that is suspected, but not proven, to have an autoimmune component, as many of those diagnosed with CFIDS have circulating
antinuclear autoantibodies."
This misguided understanding of what CFIDS actually is
explains why mainstream medicine has been of no use to people with this "syndrome."
In fact, the use of the word "syndrome" belies the fact that they do not
understand the causation or treatment. When a doctor tells you that you have
a "syndrome" you can know that no help is forthcoming. Typically, such doctors recommend "antidepressants."
Patients leave their offices with diminished respect for medicine because they
know what they have is not depression.
Many alternative medicine practitioners, on the other
hand, grasp that CFIDS has something to do with toxicity and they approach the
illness with various methods of "detoxification." However, the illness
is not that simple and this explains why these practitioners achieve sometimes
fair, but temporary, results. Usually a patient with chronic fatigue ends of
self-treating because no one seems to understand the illness.
One possible symptoms of CFIDS is chronic oppressive muscular
pain, a condition which has been termed fibromyalgia.
In fact, the cause of CFIDS is a condition of heavy metal
(usually mercury) toxicity/overload complexed with an intestinal gut wall chronic
inflammation. That is the briefest of definitions which does not even hint at
the complexity of treatment and surely requires explanation.
But, before I explain the cause and proper treatment of
this disorder, let me list possible symptoms of CFIDS (no one has all of these
symptoms, but if you have CFIDS, you will recognize many of these in yourself)
:
- constant relentless fatigue, helped little by rest
- reduction of activity by 50% or more
- severe muscular weakness
- chronic pain in muscles
- attention deficit
- difficulty concentrating
- difficulty calculating
- memory disturbance
- spatial disorientation
- getting lost in familiar locations
- difficulty judging distances
- often saying wrong word
- often forgetting a common word
- sleep disturbance
- headache
- changes in visual acuity
- seizures
- numbness
- tingling
- lightheadedness
- feeling spaced out
- difficulty with balance
- difficulty moving tongue to speak
- ringing in ears
- paralysis
- blackouts
- photophobia
- alteration of in sense of taste
- alteration of in sense of smell
- alteration of in sense of hearing
- sleep is non-restorative
- decreased libido
- twitching muscles
Conventional medicine was very slow to recognize the existence of CFIDS and many rigid doctors still deny that it exists.
Those conventional doctors who do try to treat it use drugs, treating CFIDS as if it were depression, using anti-depressants.
This approach is not only incorrect (i.e. the cause of CFIDS is not insufficient quantities of the latest drug pushed by the
pharmaceutical industry), it is also ineffective.
How CFIDS Develops
Let me walk you through how CFIDS develops and this will
make the treatment of the illness comprehensible. The lining of the gut is a
delicate membrane and the wall of the gut behind it contains 80% of the immune
system. These patches of immune or "lymphoid" tissue are called "Peyer's
patches" for Dr. Peyers who described them over 100 years ago. When the
digestive/immune system complex works correctly, the microflora (bacteria) in
the food passing through the gut is closely regulated. Secretory A is an antibody
which is placed on the surface of the gut wall and it kills off "bad"
bacteria, fungus, and yeast. The integrity of the immune system in the gut wall
depends on the integrity of the gut lining. If the gut lining breaks down and
lesions appear, these lesions serve as entry points for pathogenic bacteria,
fungus, and yeast. Once embedded in the gut wall, the toxicity these bacteria produce
renders the immune system incapable of regulating the microflora still in the
lumen of the gut and this produces "dysbiosis" (overgrowth of the
"wrong" or "bad" organisms). The toxins released by this
dysbiotic condition account for the symptoms of CFIDS.
Now, having said that, we come to understand the danger
involved in "bad habits." Here are the bad habits which can lead to
breakdown of the gut wall: (1) having dental work which involves metals, (2)
overuse of antibiotics, (3) long-term and frequent consumption of coffee, (4)
long-term and frequent consumption of alcohol, (5) smoking, and (6) stressing
oneself and allowing this to go on for extended periods. In people who are susceptible
(and this has something to do with genetics and "constitution") the
gut lining (which is one cell layer in thickness and is called the "endothelium")
develops tiny holes large enough to admit micro-organisms. The development of
these tiny holes is called "leaky gut." In some rare individuals
this is a constant state of affairs and can actually be measured by lab tests.
In most people these tiny holes are rapidly repaired, however not before the
opportunity for invasion by micro-organisms has occurred.
Once in the gut wall, micro-organisms invade Peyer's patches
and quickly disable the immune system - not completely, but enough that the
organisms can live in the gut wall. This is a kind of "Mexican stand-off."
If two men are both armed with knives ready to strike, no one should strike
since both will die. Thus, the chronic infection which develops in the gut wall
does not kill the patient, but merely disables him/her. As the immune system
hits the skids and dysbiosis takes over, the symptoms in the list above begin
to appear.
How To Treat and Cure CFIDS
Understanding the "pathogenesis" of CFIDS allows
us to shut it down. Here are the steps:
(1) The offending agent or agents must be eliminated.
Mercury and other metals, antibiotics, coffee, alcohol, cigarettes, and excessive
stress all have to go. That sounds easy, but when the patient has a mouth full
of dental metals, it become a big expensive project and here one encounters
dentists who have no idea of the damage they are doing to some people by installing
tons of dental metals. There is no dental work which cannot be done free of
metals, but there are dentists who can't do that work and there are other dentists
who refuse to do that work. Here we encounter the existence of institutionalized
ignorance and take it from me, you will not be able to educate or change your
dentist and his/her point of view. What you have to do is find a "metal
free dentist" and they are rare. Those dentists trained in the Netherlands
are a good choice as it is illegal to install mercury in human beings in that
culture, but those people are not commonly found in the U.S. (although we have
one here in Santa Rosa). Also, when metals are drilled out, they vaporize
("sublimate") and part of it is inhaled. Therefore, one should have
the dental work done and then go straight to a doctor (and these are also rare)
who can give an IV to chelate out the inhaled metals within two
hours - before it is methylated by the liver and deposited in the brain and
spinal cord.
(2) When the mouth is free of metal, it is time to test
for the "residual metal burden." The source of metal may have been
the dental work, but the real problem (where the rubber meets the road) is the
metal that has migrated to the rest of the body over those years of exposure.
This test is called a "Challenge Test." A chelating agent is given
(usually intravenously) and a six hour urine collection is then analyzed for
the toxic metals excreted. A plain blood or urine test will be negative unless
exposure to large amounts of mercury or other metals has occurred in the last
two days because of the fact that toxic metals are stored inside cells and is
not available for measurement in blood or urine. (Many doctors do not understand
this point.)
(3) When the results of that test are in, the doctor will
better be able to prescribe oral or intravenous chelation to bring down the
levels of toxic metals. The higher the levels revealed by the test, the
lower should be the dose of oral or IV chelation. The reason for this is the
fact that too rapid removal of metals can raise the blood levels to intolerable
heights. (Metals have to traverse the blood when they come out of cells in order
to reach the kidneys and liver to be excreted.) The process of metal detox will
require anywhere from one to eight months.
(4) When metal detox is complete (and completion is proven by
another Challenge Test), the final phase of treatment can begin. This involves
the
SanPharma Protocol, a use of the SanPharma Remedies devised to regenerate
the immune system. Until this is accomplished, the patients with CFIDS will
not recover and unless this last step is taken, there is little reason to do
the first three steps. The SanPharma Remedies are a German product and they are
classified as "isopathics." American medicine has nothing in this
category, so we are indebted to the Germans for developing these wonderful remedies.
They consist of specific compounds isolated from pathogenic bacteria which safely
and effectively train the immune system to deal with these organisms. The protocol
requires eleven weeks and for most people there is a small maintenance program
which prevents CFIDS from making a come-back.
(To look deeper into this phenomenon, read this article:
mercury,
gut wall infection and fatigue.)
When all these steps are complete, patients commonly report
to me "I have my life back." Those of us who do not have CFIDS have
a hard time understanding what this means, but those with CFIDS know exactly
what this means. Imagine that you just had surgery and that you are waking up
from the anaesthesia. You are "half in and half out." Now, imagine
that you become stuck in that condition. That is how it feels to have CFIDS.
Santa Rosa, Sonoma County, California, Northern California, CA.,